Australian Childhood Vision Impairment Register
The Australian Childhood Vision Impairment Register is sponsored by the Royal Institute for Deaf and Blind Children, in partnership with low vision service providers, education providers, and eye health professionals across Australia. The aim of the Register is to collect data to build an accurate picture of Australian children with vision impairment. The data is used by groups who provide services to children with vision impairment and also by researchers working in the field of childhood eye and vision disorders.
Vision impairment in children is quite rare so the data from the Register is vital when reaching accurate conclusions about the types of eye disease children have, how common these conditions are and how their vision is affected. The data also shows the type of support children require e.g. low vision aids, orientation and mobility training and braille.
If you are a child aged 0-18 years, or the parent or a guardian of a child with vision impairment in this age range, you are invited to join the Australian Childhood Vision Impairment Register. You can read more about the inclusion criteria [pdf, 2.1MB] (Accessible version [docx, 12KB]) – these are the characteristics your child must have to join the Register. If you are unsure you can ask your eye health professional or contact Register staff by filling in the enquiry form on this page.
Please note it is important that parents/guardians are aware that by registering their child with the Australian Childhood Vision Impairment Register, their child will not automatically qualify for support in areas such as education. Criteria for such support are determined at an Australian state level and as such may have different criteria to the Register.
If you decide to register your child, and you agree, we will send your child a welcome certificate. You will also be offered membership to our online parent forum and will receive email updates.
Please click on here to register your child. This will link into the Parent/Guardian and Older Child Information Statement version 17, 3rd December 2014.
Enquire by post or phone
Fill in the form below, and we will contact you. Alternatively, send an email or call to discuss your enquiry.
(02) 9872 0248
Complaints about this research: This project has been approved by the Hunter New England Human Research Ethics Committee, Reference Number 08/09/17/5.04. Should you have concerns about your rights as a participant in this research, or you have a complaint about the manner in which the research is conducted, it may be given to the researcher, or, if an independent person is preferred, to the Hunter New England Human Research Ethics Professional Officer, Hunter New England Research Ethics Unit, Locked Bag 1, New Lambton, NSW 2305. Telephone: (02) 4921 4950.